When Life Tests You…

[Written April 2016] Yesterday was a really bad day. I had no energy and not even an ounce of strength left in me. When I want to explain to people what this disease feels like I tell them… Let’s say you are going for a 7km run. The beginning is all great and you feel […]

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Memories & Dreams

Everything I used to know, is now everything I no longer understand. You live and survive. And you dream of everything you have never had. You build memories your entire life. Every single moment, is a memory. Some memories come and go, without another thought. Some memories live with you forever. And some, can never […]

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To Persevere

How I have adopted is something that continues to be a work in progress. There is no formula or answer. How do you go from being afraid to persevering? My friend, I’ll tell you… When I was first diagnosed I was afraid to talk about it, afraid to communicate it to anyone. I didn’t want […]

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Feeling Lost

I went for a walk this morning, much too early for my liking. Thinking too much of too many things. Wishing someone could show me the way. Wishing someone could show me who I am. Who I need to be, what I need to do… It’s such a great purpose to pursue. A purpose much […]

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If you can’t be a sun, be a star

A large majority of you that read my blogs are between the ages of 15-21 and with school right around the corner, I thought this blog was fitting. Six months before Dr. Martin Luther King, Jr. was assassinated, he spoke to a group of kids at a high school in Philadelphia on October 26, 1967. […]

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The First Time I got Stitches…

Was today. I can’t tell you how many times I’ve fallen since being diagnosed with a muscle disorder. Too many times to count. Most of the times I can walk away with a little bruise here or there. Sometimes I have to go to the emergency because I tore a ligament or something. Today, I […]

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A New Chapter

You have to make a lot of big decisions in life and no matter what you do, you are always going to end up hurting someone. The plan to move was always there. But I wasn’t into moving quickly. I have made excuses and delayed it. I have a dream inside of me. Everyday I […]

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Outside Looking In

There are a lot of questions that I get asked on a daily basis. Some are easy to answer, some are harder. You never want to give someone a wrong answer, but you hope with your experiences and knowledge, you send them in the right direction. More than half the questions I am asked come […]

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Speaking of Adventure

I recently watched an interview with Diane Sawyer and I really liked a piece of advice her father gave her. He said, “Do what you love, do it in the most adventurous place, and make sure it helps people.” I had a previous blog that was all about the importance of being more involved and […]

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